Jesy Nelson has shared an emotional and deeply painful update about her twin daughters.
On Sunday, January 4, the former Little Mix member posted a video to social media where she spoke openly about the health of her eight month old twins, Ocean Jade and Story Monroe. In the video, the 34 year old singer explained that both girls have been diagnosed with a rare genetic condition known as Spinal Muscular Atrophy Type 1.
“We were told that they most likely will never be able to walk,” Nelson said in the Instagram video as she fought back tears. “They may never regain strength in their necks, which means they will live with disabilities. Right now, all we can do is make sure they get the treatment they need and hope for the best possible outcome.”
She added, “Thankfully, the girls have already received their treatment, and I am beyond grateful for that because without it, they would not survive.”
Nelson went on to explain that since the diagnosis, she has felt like she has had to take on the role of a medical caregiver for her daughters. She shared that she has learned how to use breathing machines and manage medical tasks that she feels no parent should ever have to face.
JoJo Siwa offered her support in the comments, writing, “Sending so much love and prayers,” alongside two red heart emojis.
According to the Cleveland Clinic, Spinal Muscular Atrophy is an inherited neuromuscular condition that leads to muscle weakness and muscle loss over time. Type 1 is the most severe form and makes up about 60 percent of all cases, with symptoms usually appearing within the first six months of life. While there is currently no cure, treatments and medications can help slow progression and improve quality of life.
Jesy Nelson and her fiancé, Zion Foster, welcomed their identical twin daughters on May 15, 2025. The babies arrived early at 31 weeks after Nelson experienced complications related to carrying monochorionic diamniotic twins, meaning they shared a placenta but had separate amniotic sacs.
Nelson said she decided to share the video in hopes of helping other parents who might notice similar warning signs in their own children.
“I really believe that if I can help spread awareness and talk about the signs, then something positive can come from this,” she said, pointing to symptoms like difficulty holding themselves up, a frog like leg position, and fast breathing from the stomach.
“If anyone watching thinks they recognize these signs in their child, please take them to a doctor or hospital right away,” she continued. “Time truly matters, and treatment is crucial. The sooner your child gets help, the better their chances for a fuller life.”Jesy Nelson has shared an emotional and deeply painful update about her twin daughters.
On Sunday, January 4, the former Little Mix member posted a video to social media where she spoke openly about the health of her eight month old twins, Ocean Jade and Story Monroe. In the video, the 34 year old singer explained that both girls have been diagnosed with a rare genetic condition known as Spinal Muscular Atrophy Type 1.
“We were told that they most likely will never be able to walk,” Nelson said in the Instagram video as she fought back tears. “They may never regain strength in their necks, which means they will live with disabilities. Right now, all we can do is make sure they get the treatment they need and hope for the best possible outcome.”
She added, “Thankfully, the girls have already received their treatment, and I am beyond grateful for that because without it, they would not survive.”
Nelson went on to explain that since the diagnosis, she has felt like she has had to take on the role of a medical caregiver for her daughters. She shared that she has learned how to use breathing machines and manage medical tasks that she feels no parent should ever have to face.
JoJo Siwa offered her support in the comments, writing, “Sending so much love and prayers,” alongside two red heart emojis.
According to the Cleveland Clinic, Spinal Muscular Atrophy is an inherited neuromuscular condition that leads to muscle weakness and muscle loss over time. Type 1 is the most severe form and makes up about 60 percent of all cases, with symptoms usually appearing within the first six months of life. While there is currently no cure, treatments and medications can help slow progression and improve quality of life.
Jesy Nelson and her fiancé, Zion Foster, welcomed their identical twin daughters on May 15, 2025. The babies arrived early at 31 weeks after Nelson experienced complications related to carrying monochorionic diamniotic twins, meaning they shared a placenta but had separate amniotic sacs.
Nelson said she decided to share the video in hopes of helping other parents who might notice similar warning signs in their own children.
“I really believe that if I can help spread awareness and talk about the signs, then something positive can come from this,” she said, pointing to symptoms like difficulty holding themselves up, a frog like leg position, and fast breathing from the stomach.
“If anyone watching thinks they recognize these signs in their child, please take them to a doctor or hospital right away,” she continued. “Time truly matters, and treatment is crucial. The sooner your child gets help, the better their chances for a fuller life.”
Watch Nelson’s full update on Instagram below.
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